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Congenital Myotonic Dystrophy Fight Fund

Registered charity number 205395

We are a charity supporting children and families who have congenital myotonic dystrophy; a little known, life limiting, muscle wasting condition that is so variant in it’s impact no two children present in the same way. We urgently need to find a cure for all children with this devastating condition. We are improving awareness of this rare condition so vital funds for research can be raised to help find a cure. We would also like to connect families and provide any support that is needed.

Congenital Myotonic Dystrophy Fight Fund offers a variety of events to participate in and raise valuable donations to support the charity. Check out the events below for more information.

Cycling

London to Amsterdam Open June 2019
Cycle from the heart of the UK to Amsterdam via the beautiful city of Bruges on this amazing charity bike ride challenge of a lifetime. The London to Amsterdam bike ride takes cyclists through beautiful English villages and on into Europe, passing through historic Bruges and Breda before finishing in any cyclists dream city – Amsterdam.

Running

Santa Run
The Do It For Charity Santa Run is now in its 9th year and is London’s LARGEST Santa Run. In 2018, the run will take place on Sunday 2nd December and thousands of Santas are expected to take part!

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