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Congenital Myotonic Dystrophy Fight Fund

Registered charity number 205395

We are a charity supporting children and families who have congenital myotonic dystrophy; a little known, life limiting, muscle wasting condition that is so variant in it’s impact no two children present in the same way. We urgently need to find a cure for all children with this devastating condition. We are improving awareness of this rare condition so vital funds for research can be raised to help find a cure. We would also like to connect families and provide any support that is needed.

Congenital Myotonic Dystrophy Fight Fund offers a variety of events to participate in and raise valuable donations to support the charity. Check out the events below for more information.

Cycling

London to Brighton Cycle 2018
The Do it for Charity London to Brighton Cycle Ride is a mass-participation cycle ride covering the 54 miles from south London to Madeira Drive on Brighton sea front. In 2018 the ride will take place on the 16th September and over 4,000 riders are expected to take part.

Running

Superhero Run 2018
The Superhero Run is your chance to become a real-life superhero as you pull on your cape and join thousands of fellow runners as they descend on Regent’s Park, London, in a bid to make the UK a more charitable place to live!

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